The following email was sent to Congressman Tim Murphy
Please Support Funding for the
Multiple Sclerosis CDMRP and Lifespan Respite Care Program in Fiscal Year 2017
Dear Congressman Murphy,
As an MS activist and your constituent, I urge you to sign
on to two Dear Colleague letters supporting funding important to people
affected by multiple sclerosis (MS):
(1) the Representatives Michael C. Burgess, MD (TX-26), and Tony Cardenas (CA-29) letter supporting $10 million for the Multiple Sclerosis Congressional Directed Medical Research Program (MS CDMRP) fiscal year FY 2017 deadline: March 10 and
(2) the Reps. Jim Langevin (RI-2) and Gregg Harper (MS-3) supporting $5 million for the Lifespan Respite Care Program deadline: March 21
The MS CDMRP funds innovative research that is complementary to research conducted by the National Institutes of Health (NIH). In the final FY 2016 budget, the MS CDMRP received $6 million (a $1 million increase over its FY 2015 level). More funding is needed--as less than 15% of research applications submitted to the MS CDMRP were able to be funded (on average) FY 2009-2014. To sign on to the Burgess-Cardenas MS CDMRP letter, please contact James.Decker@mail.house.gov (Rep. Burgess) or Jacqueline.Usyk@mail.house.gov (Rep. Cárdenas) by COB on Thursday, March 10.
While caregiving is essential and is the backbone of our nation's long-term care system it can be draining. A 2012 National Alliance for Caregiving (NAC) survey of individuals providing care to people living with MS showed that: 64% of caregivers were emotionally drained, 32% suffered from depression, and 22% had lost a job due to caregiving responsibilities. 66% said respite care would allow their care recipient to live at home longer.
Respite care offers professional short-term help to give family caregivers a break from the stress of providing care, and has been shown to provide family caregivers with the relief necessary to maintain their own health and bolster family stability. However, close to 90% of the nation's over 60 million family caregivers do not receive respite. Enacted in 2006, the Lifespan Respite Care Program provides grants to states to maximize existing resources and better coordinate and delivery quality respite services to family caregivers. This program has already provided grants to 33 states and the District of Columbia.
In the final FY 2016 budget, the Lifespan Respite Care Program received $3.36 million (a $1 million increase). I urge you to sign on to the Langevin-Harper Dear Colleague letter supporting $5 million for the Lifespan Respite Care Program in FY 2017 (which is in line with the President's FY 2017 budget request) by emailing todd.adams@mail.house.gov (Rep. Langevin) or scott.malvaney@mail.house.gov (Rep. Harper) by COB March 21.
(1) the Representatives Michael C. Burgess, MD (TX-26), and Tony Cardenas (CA-29) letter supporting $10 million for the Multiple Sclerosis Congressional Directed Medical Research Program (MS CDMRP) fiscal year FY 2017 deadline: March 10 and
(2) the Reps. Jim Langevin (RI-2) and Gregg Harper (MS-3) supporting $5 million for the Lifespan Respite Care Program deadline: March 21
The MS CDMRP funds innovative research that is complementary to research conducted by the National Institutes of Health (NIH). In the final FY 2016 budget, the MS CDMRP received $6 million (a $1 million increase over its FY 2015 level). More funding is needed--as less than 15% of research applications submitted to the MS CDMRP were able to be funded (on average) FY 2009-2014. To sign on to the Burgess-Cardenas MS CDMRP letter, please contact James.Decker@mail.house.gov (Rep. Burgess) or Jacqueline.Usyk@mail.house.gov (Rep. Cárdenas) by COB on Thursday, March 10.
While caregiving is essential and is the backbone of our nation's long-term care system it can be draining. A 2012 National Alliance for Caregiving (NAC) survey of individuals providing care to people living with MS showed that: 64% of caregivers were emotionally drained, 32% suffered from depression, and 22% had lost a job due to caregiving responsibilities. 66% said respite care would allow their care recipient to live at home longer.
Respite care offers professional short-term help to give family caregivers a break from the stress of providing care, and has been shown to provide family caregivers with the relief necessary to maintain their own health and bolster family stability. However, close to 90% of the nation's over 60 million family caregivers do not receive respite. Enacted in 2006, the Lifespan Respite Care Program provides grants to states to maximize existing resources and better coordinate and delivery quality respite services to family caregivers. This program has already provided grants to 33 states and the District of Columbia.
In the final FY 2016 budget, the Lifespan Respite Care Program received $3.36 million (a $1 million increase). I urge you to sign on to the Langevin-Harper Dear Colleague letter supporting $5 million for the Lifespan Respite Care Program in FY 2017 (which is in line with the President's FY 2017 budget request) by emailing todd.adams@mail.house.gov (Rep. Langevin) or scott.malvaney@mail.house.gov (Rep. Harper) by COB March 21.
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